---
title: "Data Summary"
id: "1364"
type: "page"
slug: "summary"
published_at: "2019-11-22T20:09:53+00:00"
modified_at: "2026-07-23T18:17:51+00:00"
url: "https://dss.niagads.org/summary/"
markdown_url: "https://dss.niagads.org/summary.md"
excerpt: "Funded in 2012, NIAGADS became the NIA-designated national data repository to facilitate data sharing for the study of genetics of Alzheimer’s disease and other related dementias (ADRD). The NIAGADS Data Sharing Service (DSS) was developed in 2018 to host and..."
---

## 500+ approved Data Access Requests

263

via DSS

Number of approved DARs for data through the DSS NIAGADS data portal. Go to [DARs page](/data-access-requests/)
 to see the full list of approved requests.

208

via dbGaP

NIAGADS manages the submission and review of applications for the ADSP dataset in dbGaP (phs000572). See all [approved requests](https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000572.v8.p4#authorized-requests-section)
.

175

via NIAGADS

Number of approved DARs through the archived NIAGADS database.

## NIAGADS DSS Data Summary

208,533

 participants

680,608

 files

Total size: 2406TB

 total size

### ADSP Sample Composition

NIAGADS DSS is currently hosting 58,507 whole genomes and 20,503 whole exomes from the ADSP and other AD and Related Dementia’s studies. A breakdown by self-reported population classifications is shown here.   
 Data types include CRAMs, gVCFs, quality-controlled project level VCFs, and harmonized phenotypes. These data are available for qualified researchers to access. More information can be found on the [ADSP Umbrella dataset page.](https://dss.niagads.org/datasets/ng00067/)

## NIAGADS Data Summary

​

147

Datasets

98

Cohorts

27

Genomic Data Types

### Data Availability and Types

All data derived from NIA funded Alzheimer’s Disease (AD) genetic studies are expected to be deposited in NIAGADS or another NIA approved site. As the NIA designated repository, NIAGADS has assisted with the deposition of genomic data of various types. Go to [NIAGADS](https://archive.niagads.org/datasets)
 to view available datasets.

Graph updated June 2026