We are hosting a collaborative webinar focused on NIAGADS controlled-access datasets and data interoperability across repositories and invite you to participate! This upcoming session is designed specifically for investigators and research teams working with controlled-access AD/ADRD genomic data. Our goal is to better understand how you discover, access, extract, and integrate NIAGADS…
Category: NIAGADS
ADSP Phenotype Harmonization Consortium Release 4 is Out!
The fourth release from the Alzheimer’s Disease Sequencing Project Phenotype Harmonization Consortium (ADSP-PHC), which includes harmonized phenotypes for ADSP participants with sequencing, is available in the ADSP Umbrella Dataset (NG00067v20). Importantly, this release includes harmonized diagnosis and plasma biomarkers for the first time. Existing users with approval for NG00067 will have access…
Attending ASHG 2025? See Us in Action!
Are you attending ASHG 2025 this week, 10/14/25-10/18/25, in Boston, MA, USA? The NIAGADS and GCAD team will be there presenting our work and in Booth 1345. See a schedule of where you can connect with our team below: Activity Type Wednesday, 10/15/25 Thursday, 10/16/25 Friday, 10/17/25 Talk Genomic Frontiers…
Visit NIAGADS at Booth 609E at AAIC!
AAIC is here! Stop by the NIAGADS booth to chat with our staff and special guest, the ADSP Phenotype Harmonization Consortium (PHC). See when our subject matter experts will be available below: Time SundayJuly 27, 2025 MondayJuly 28, 2025 TuesdayJuly 29, 2025 WednesdayJuly 30, 2025 10:30-11:45 AM NIAGADS Knowledgebases and…
ADSP and NIAGADS Will Be at AAIC!
Updated to include an additional conference session and posters on 7/21/25. Are you going to AAIC this year? If you will be in Toronto, ON, Canada for the conference between July 27th through 31st, 2025, check out the events the ADSP and NIAGADS are participating in below: Pre-conference Workshops ADSP…
Just Launched: NACC’s Multimodal Query Tool (MQT v1)
The National Alzheimer’s Disease Coordinating Center (NACC) just released the first version of their Multimodal Query Tool (MQT v1), which is now live and freely available to the global research community via the NACC Data Front Door (https://lnkd.in/e5uyCqwu). The MQT allows researchers to search, visualize, and access integrated multimodal data…
NIH Seeks Public Input on Responsible Development of Innovative AI Tools
NIH is committed to advancing novel AI approaches that have the potential to accelerate research and improve the health of the public. As such, NIH is seeking input from the public on how to develop and share new generative AI tools while maintaining the highest privacy protections for biomedical research…
Implementation Update for Data Management and Access Practices Under the Genomic Data Sharing Policy
On April 2, 2025, updates to the National Institutes of Health (NIH) Data Management and Access Practices under the Genomic Data Sharing (GDS) Policy took effect. These changes are relevant to users of NIH controlled-access data. NIH is making changes to modernize the security standards provided for NIH controlled-access data…
ADSP Phenotype Harmonization Consortium Release 3 is Out!
The third release from the Alzheimer’s Disease Sequencing Project Phenotype Harmonization Consortium (ADSP-PHC), which includes harmonized phenotypes ADSP participants with sequencing, is available in the ADSP Umbrella Dataset (NG00067v15). Existing users with approval for NG00067 will have access to PHC release 3 in alignment with their approved consent levels. The…
Join NIH “Community” Days to Learn About GDS Policy Updates Effective 1/25/25
The National Institutes of Health (NIH) will be holding “Community Days” on: Registration is required. Please use the links above to register for the day you plan to attend. ASL will be provided. Who Should Attend: All researchers and their institutional officials who have access to or are planning to…